Helen’s varied career spans work in charities, healthcare and the arts. She has been involved with the ME Trust through her work on the Fundraising Development Group since 2017. Her professional life started in accountancy and HR before moving into healthcare and the charity sector.
She brings experience from roles including as a Health Centre Manager in the NHS and as Chief Executive of various arts organisations including work with disabled people, older people, as well as children and young people.
She is also a professional fundraiser and for 5 years was Head of Fundraising at Burrswood Hospital, where she met Hannah Clifton, Founder of the ME Trust. Helen has a passion to help people with ME, having seen the difficulties experienced by friends living with this cruel illness.
Clinical Governance Lead
Jane worked as a GP in East Sussex for 28 years, after qualifying as a doctor from Kings College Hospital, London in 1981 and GP training in Tunbridge Wells. In 2015 she became a physician at Burrswood Hospital, and as part the multi-disciplinary team working there, cared for in-patients with ME/CFS. Joining the ME Trust in 2017, as Clinical Governance Lead, she liaises between the Board of Trustees and the Clinical Team, helping to shape the structure of the service as it grows.
As a family doctor, Jane journeyed for many years alongside patients with undefined illness which later became known as ME/CFS, sharing the challenges of lack of knowledge, research and resources. She recognises the need for long term care, hope and individually tailored advice and looks forward to Specialist Advice being available within the NHS, not just for diagnosis, as at present, but to address the complexity of chronic disease management, and to provide the support needed for carers and families.
Jane’s role, which includes Care Quality Commission (CQC) Registered Manager and Safeguarding Lead, involves working to assure quality, accountability, best practice, development, and listening to those who use the services of this caring and patient centred organisation.
Helen has over 30 years’ experience in PA and administrative support in a wide variety of industries including advertising, video production, publishing, restaurants, pre-school and business consultancy. She is delighted that her skills are now being used for such a great charity.
Having no personal experience of ME, she has been shocked at the desperate lack of help and support available to those suffering from ME/CFS and their carers, both in this country and beyond and has developed a real desire to help The ME Trust achieve its vision.
Helen is married with two boys. In her spare time she hits a little white ball from tee to green, is an active member of her local church and continues to pursue her lifelong love of amateur theatre.
Rosemarie has been working in admin and finance for 23 years now, first at a local IT company and more recently at her church. Although she has no personal experience of ME herself, she has seen friends suffer with ME and various other “invisible” conditions so is really pleased to be able to bring those skills to this great charity.
Having volunteered for 14 years previously, she has been Children’s Pastor at her church since 2017 and loves helping people. She’s also a big animal lover and enjoys spending her free time with her two cats.
Social Media Support
Julia has nearly 15 years of experience working in consumer goods, FMCG and the banking industry. She worked in various marketing and communication roles from Internal Communications and PR to Marketing Strategy, Retail Marketing and Digital Marketing.
Julia is very pleased to be able to transfer her skills to such an inspiring and visionary charity.
Having seen the impact ME/CFS has on people’s lives and on their carers, and the lack of support they experience, she is passionate about helping people with ME.