The ME Trust Approach
The ME Trust is committed to a belief in ME as a very real biological illness. We fully support research into the biological causes of the illness and are currently encouraging our patients to sign up to the new DecodeME research study.
We aim to treat the physical symptoms of ME with medical advice and intervention, nursing care and physiotherapy. We also acknowledge that any long term illness can have psychological effects, and we therefore offer counselling, emotional support and spiritual direction for people who find that helpful. This is the model of whole person care which is fundamental to the activities of The ME Trust.
The service provided by the ME Trust is rated Outstanding by the Care Quality Commission. See the report (on another site)
The NICE Guideline for the Diagnosis and Management of ME/CFS is currently under review. The ME Trust responded to calls for feedback on the new draft guideline which is now expected to be finalised and published in August 2021. We support the views expressed in the draft guideline that: 1) management of the illness should be undertaken by a multi disciplinary team working with the patient and taking their views into account; 2) GET (Graded Exercise Therapy) and CBT (Cognitive Behavioural Therapy) should not be recommended as a treatment for people with ME/CFS.
What is ME/CFS?
ME/CFS is classified as a neurological illness by the World Health Organisation and the UK National Health Service. Approximately 250,000 people in the UK suffer from ME/CFS, an umbrella term for a neurological disease or spectrum of diseases.
We are working on a series of short films intended to provide helpful information on different aspects of caring and supporting people with ME/CFS and their families – please come back to this page soon. In the meantime, these videos may be helpful.