The ME Trust has been invited to attend the round table discussion at NICE regarding the paused guideline for ME/CFS. The discussion will be held on Monday, October 18th.
We are keen to understand the objections that have been raised and have prevented the publication of the new guideline.
We are not going to the meeting to enter into any discussion or negotiation about the content of the guideline.
We believe that the guideline was arrived at through a robust process of gathering, examining and reviewing evidence from a wide cross section in interested parties, and that it should be published, and implemented without further delay.
As a member of Forward-ME we agree with their recent “Statement for people with ME”