Our physio’s expertise and advice particularly helps to improve quality and life, working gently, step by step towards increasing levels of activity and function. She often begins with a questionnaire of “Baseline function” and together works out with her patient what are their own priorities and aims. This may also involve family and carers.
Coming up with a plan gives the patient a sense of control and hope. Reviews allow for adjustments and take into account the variable nature of ME, which is not expected just to steadily improve day by day.
Our physio can help with pacing, which is learning to work within one’s “Energy Envelope”. This avoids “Boom and Bust” (doing too much), which can result in Post Exertional Malaise (as the doctors call it), or Payback (as families call it).
Learning to truly relax, in a planned way, allows the body to refresh and repair, so advice about resting positions and pain management from the physio is helpful, along with guidance addressing the damage that may have occurred due to spending a long time in bed or indoors.
What to expect from your initial consultation
Our physio will be in touch by email to arrange an initial consultation and may ask you to complete a short pre-consultation form either prior to or during this first consultation. This will help her to understand how best to help you and to help develop a treatment plan.
The initial consultation will be virtual (phone/zoom/facetime). Follow up sessions will remain virtual unless a home visit is deemed appropriate and clinically safe. Our physio will provide videos and pictures to help make sense of advice, for example exercise advice or resting positions.
After your initial appointment, you will be sent a written summary of your consultation, and details of any recommended exercise.
Follow up appointments will be arranged on an individual basis according to your treatment plan.
Please note: The ME Trust gives access to clinical advice from healthcare professionals with experience and expertise in ME/CFS. The physio’s consultation summary will include a recommended treatment plan. It may be useful to support your case when making benefit or employment claims, but The ME Trust is not able to offer a service with the sole purpose of providing letters and reports.
For further information about claims and benefit applications, Action for ME have helpful advice on their website here, as well as offering a Crisis, Support and Advocacy service which covers these areas.