On 16 September 2021, the ME Trust board approved a decision to merge with Action for ME following a process of due diligence started in June, and after consulting with key stakeholders of both charities.
Action for M.E. is a UK charity that takes action to end the ignorance, injustice and neglect faced by people with M.E. Along with providing information, support and advice to people to help improve their health and well-being, Action for M.E. works with professionals to enhance the care and support that people with M.E. receive and funds pilot research projects to advance knowledge of the illness.
Both the ME Trust and Action for ME remain frustrated by the current lack of provision for people with M.E, and other post viral syndromes. A postcode lottery often determines access to specialist services and there is huge variability in what these services provide. There is simply not enough support for children and adults with M.E. now, let alone with an increase in diagnoses following the long term impact of Covid-19.
In response to this public health crisis and gaps in existing service provision for people with post-viral syndromes like M.E., we will merge with Action for ME, allowing us to combine the power of our organisations and strengthen the services we offer to people with M.E.
We plan to scale up our current clinician-led, holistic health and wellbeing services and fill the gaps in provision more quickly. We now anticipate merging both charities and launching our combined service offer at the end of November/early December 2021. We will continue to keep our website updated with further information about the merger including timescales.